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Browsing: Autism

Dhuha’s New School

On 26 Mar 2009, In Autism, Family, by , No comments

As Salaam Alaykum wa Rahmatullahi wa Barakatuhu,

Yesterday, we went to visit a school that we are hoping Dhuha will be able to attend next September. It was great. They had a spa jacuzzi thing, a ‘soft room’, which looked a lot of fun. More than all that, was the specialization of the staff. This school is for children with Autism Spectrum Disorder. Plus, they have many types of therapy available for the children that need it, which includes speech and language therapy that is ideal for Dhuha. All in all it looked like a great set-up and Dhuha was even allowed to play in the classroom during our visit and I have to say that she fit in.

The hardest part of having a special needs child, for me, was coming to terms with it and then for me to vocalize it. Now I just want her to get the best care possible because she deserves it and that’s why I want her to go to this school.

Thank Allah for such a Beautiful Girl

On 18 Mar 2009, In Autism, Dhuha, by , 1 Comment

As Salaam Alaykum wa Rahmatullahi wa Barakatuhu,

Yesterday Dhuha’s special needs teacher came and she sat and played with her for over an hour. As I sat there watching her, how she played and copied her teacher, I couldn’t help but think no matter what happens I am so thankful that Allah the Most High has given me Dhuha just as she is.

Having a special needs child is challenging and frustrating and worrying but the benefits and rewards surpass all of that. I do want her to improve and get better and it seems as if she is but I don’t know how much of that is in my own head or how much of it is real progress.

In a few weeks, we have to take her to the hospital to have a hearing test done. During this test they have to put her to sleep and they will be looking at her brain stem for reactions to the test. She cannot do a normal hearing test because she doesn’t respond as normal children do. Although, I am 100% sure she can hear normally, her paediatrician ‘needs’ the test done so that she can diagnose her as autistic. Please make du’aa for her.

Getting the diagnoses has been a real mission impossible, which consisted of a number of trips across town, hours of waiting and ten minute meetings. Long waits at the paediatrician’s office with long meetings asking familiar questions about her development. Making phone calls that are not returned and people sending us in the wrong direction. Alhamdulillah, we now have an appointment for diagnoses, which is for the 27th of April. We need the diagnoses to get more specialised help, especially access to nurseries that deal with autistic children.

Oh Allah, All thanks and praise belongs to You alone.

Meningitis C and Autism

On 03 Mar 2009, In Abdullah, Autism, Dhuha, by , No comments

As Salaam Alaykum wa Rahmatullahi wa Barakatuhu,

I grew up in a family with a long tradition in chiropractics, which meant we all had a strong negative view of drugs and the practices of medical doctors. My uncle (my father’s father’s brother) Dr. LSD, who shot himself in a park a few years ago would often rant about the evils of antibiotics at family functions. My father did his best to prevent us from getting vaccinated and the only ones I got was when my mother took me or when school forced my father. I remember a few time missing a couple of days of school because he waited until the last minute.

I took this anti-drug attitude a bit further and I went years without taking any sort of medication. I would suffer through sickness or pain. My attitude towards taking pills and things carried on until, I suffered from severe toothache a year ago; I never went to dentists either. I was too poor to get it pulled and so I had to suffer that’s when I discovered the joy of Acetaminophen.

I am aware of the Islamic tradition of treating illness and that is why I have taken a different approach with my daughters. When they are sick, they take medicine and see a doctor and when it’s time for their vaccinations they get them. Sabah even got three in one day. However, recently I have been giving a lot of thought to Dhuha’s condition and I have heard that some research suggested that the MMR vaccination might have something to do with autism. Although, it should be said that the WHO has dismissed it and many other professionals have as well. In any case, since Meningitis C is an optional vaccination, I wanted to see if I could find anything that might connect them. I couldn’t find anything, which is good. In fact, it seems like a safe and beneficial immunisation. So, I don’t think I will object to her getting the vaccination.

Strangely Relieved

On 19 Feb 2009, In Autism, Family, by , No comments

As Salaam Alaykum wa Rahmatullahi wa Barakatuhu,

My wife came to me this morning while I was washing the dishes and told me that she just learned that she has a cousin that was though to be autistic when she was younger. Now the little girl is progressing nicely though she still has some behaviour issues.

When she told me this I was relieved, see medical science suspects that genetics plays a role in whether or not someone is autistic. For the life of me I couldn’t think of a single person on either my father’s or mother’s side who had any disorder like autism and my wife said the same. That upset me because if it is not genetics then perhaps it was something I did wrong or it could have been something I could have avoided. I remember agonizing for months thinking about the time my daughter fell when she was small because I forgot to put her seat belt on and very time my wife comes up with another reason she thinks could have caused it, I relive that horrible feeling.

So hearing that bit of news today frees me from the feeling of guilt that I don’t think I deserve but felt none the less. I love my dudu and the thought of my having something to do with her condition was torture.

My Little Girl’s Voice

On 18 Feb 2009, In Autism, Family, by , No comments

As Salaam Alaykum wa Rahmatullahi wa Barakatuhu,

I was feeling a bit upset today because I was thinking that my autistic daughter will be turning three in a few weeks and with the exception of very few occasions has not spoken. I know that after a certain age, if a child does not speak there will be very little chance that it ever speaks. I think that age is between 5 – 7.

I am hoping that I will get to her my sweet little girls voice. She is so loving and so beautiful that it really hurts me to think that I might not hear it in this life. This morning when she woke and came down the stairs, I said salaam alaykum dudu (her nickname) and she gave me a great big smile. It was wonderful.

Oh Allah grant me and my family and all the Muslims Jannah.

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