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Premonition of Disaster

Autism, Dhuha, Family 21 Jan 2012

I had a sort of premonition of disaster. I tried to exclude myself from any responsibility. My attempt to dump the kids onto Zahira, while I hid in a dark corner somewhere, failed. As it was, I was stuck looking after them on my own.

The last time I had this feeling of dread, Dhuha took her faeces and spread them on her bedroom wall. After I cleaned her and her bedroom, I left her to play. Then she did it again, but this time in her sister’s room. It took ages to get it off the walls because of the textured wallpaper. My arm pained for two days. I hate textured wallpaper.

Last night, Dhuha snuck upstairs, while I was seeing to her brother. When I realised it had gone quiet, I rushed upstairs and found her and her wall covered with her faeces once again. The putrid but familiar smell was everywhere.

I put her in the bath, while I cleaned the walls. She loves the bath, so I allowed her to play. I went downstairs and started reading. About 10 to 15 minutes later, I heard a drip drip coming from the ceiling. I rushed upstairs and found Dhuha dumping large amounts of water onto the floor.

I stopped her and drained the water. Went downstairs and put a bowl underneath the drip. Went backup stairs and got Dhuha dressed. Came back down stairs to prevent the boy from playing with the bowl of water. Noticed that the ceiling was bowing where the drip was. I touched it gently and was shocked at how soft it was.

Dhuha came down and I prevented her from playing with the bowl of water. She went back up stairs. The ceiling bowed even more and finally came down. Abdurrahman was gasping at the dramatic scene and saying “Oh my God!”.

I cleaned the ceiling off the floor. It took a while. The hole is surprisingly large. When I went back upstairs to check on Dhuha and found that she had destroyed her nappy. I put her in the bathroom, while I cleaned up the new mess.

Finally, I gave her another bath. I didn’t let her play this time. Dried her off, dressed her. Went back downstairs and sat on the sofa and tried to contemplate what had happened over the last couple of hours.

Less than five minutes later there was a knock at the door, Zahira was home.

About the author

Abdullah

I am Abu Sabah Abdullah Al-Amreeki, a revert to Islam from Christianity, a husband to my beautiful wife, a father to my amazing children, an aspiring daiee and a wannabe Web developer.

2 Comments

  1. Stranded
    January 21, 2012 at 9:59 pm

    Oh subhanAllah. May Allah make it easy for your family. We never had such an extreme situation to deal with. It really is a test. You know strict behavioral regimes, although cruel sounding, sometimes work for extreme situations like fecal smearing, because of the problems it causes for the special needs person and everyone around them. Get help brother from a behaviorist. For some things it works.


  2. stranded
    January 22, 2012 at 2:50 pm

    Assalama alekum brother, hope you don’t mind me commenting again, but I have been thinking about your situation and I hope you don’t mind, but I spoke to Khaled’s senior therapist about it. I also remember discussing this with his psychologist a couple of years ago (regarding another family). Anyway.. I am sure since this is a recurring issue you have done your research and considered solutions. But I will just list a few that people have told me:
    1) an assessment by an OT to see if it is happening because of a sensory craving (wanting to touch something that feels like poop)
    2) Pain. I know families who have said that their child was having physical problems related to food intolerances, and a) had a lot of dirty diapers a day and b) engaged in fecal smearing several times a day. Elimination diets over a long period of time resolved these problems.
    3) Behavior assessment. Kids do things sometimes for other reasons and assessing behavior sometimes tells us the function of a behavior. I know one family who were fed up of trying things for years and administered consequences for fecal smearing. These would depend on the child. This family put their daughter in a cold shower (sounds terrible I know) for a few minutes every time she did it. And it eliminated the behavior. I cannot imagine how hard or frustrating it is for families and the children. I really don’t know what I would do in a similar situation.

    Please forgive me. Your daughter is in my duas inshaAllah.


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